Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Sunday, May 10, 2020

"Try to imagine Muhammad Ali without Little Richard’s winking persona, his swing and swagger ('I am the King!')."

"Try to imagine James Brown, the Beatles, Jimi Hendrix, Otis Redding, Bob Dylan, Mick Jagger, David Bowie, Janis Joplin, Elton John, and Prince without his electrical charge. Little Richard was an original, and he did not hesitate to remind his students of their debt. He once looked into a television camera and, with affection, told Prince, 'I was wearing purple before you was wearing it!'... Richard Penniman was born in 1932 into a large, poor Christian family, in Macon, Georgia. His father was a brick mason and a bootlegger. One of Richard’s legs was shorter than the other, making him a source of mockery among other children. 'They thought I was trying to twist and walk feminine... The kids would call me faggot, sissy, freak.'... Even as a child singer, Richard was known for his high range and incredible volume. But, in his father’s eyes, he was unbearably effeminate and not to be tolerated. When Richard was a teen-ager, he was thrown out of the house and went to live with Ann and Johnny Johnson, a white couple who ran a local venue, the Tick Tock Club.... Throughout his teens, he was in and out of outfits like Buster Brown’s Orchestra (where he got the name Little Richard) and the Tidy Jolly Steppers. He sang, sometimes wearing a red evening gown, under the name Princess Lavonne, in Sugarfoot Sam’s Minstrel Show."

From "Little Richard, the Great Innovator of Rock and Roll" by David Remnick (The New Yorker).

I wanted to find a photograph of Little Richard in the Princess Lavonne persona. I did find this description at Talkhouse, "Pour on the Steam: Little Richard at Age 19/Adam Weiner (Low Cut Connie) tells a tale of magical personhood in a Macon, Georgia bus station":
It was a medicine show spiritualist pseudo-psychic passing through town named Doctor Nobilio who was the first to tell Richard he would be massively famous—he just needed to get the hell out of Macon. He quit high school and joined up with a series of amazingly-titled rinky-dink traveling shows, initially billed as Little Richard, and then as the great Princess Lavonne. He performed with Dr. Hudson’s Medicine Show, Sugarfoot Sam from Alabam, the Tidy Jolly Steppers, and the Broadway Follies. Princess Lavonne was an intense, hilarious Queen in Pancake 31 makeup. He worked on his schtick, but ultimately was an awkward drag performer. He had a natural gift to electrify and seduce, but with his mismatched legs, he couldn’t figure out how to walk or dance in heels so he would just stand still and wait for someone to open and close the curtain...
I'd also love to hear the story from the perspective of Ann and Johnny Johnson. Who were these white people who took in Little Richard when his father was so cruel to him? Or was his father cruel to him?
Bud Penniman. What voice did that man have?

Thursday, March 19, 2020

"I am a chronically ill rabbi who offers spiritual care to those with illness, and elders coming to the end of life."

"Almost no one in my personal or professional world would 'earn' care if the United States were to come to a scenario like Italy. Not my 102-year-old client with brilliant blue eyes and ferocious curiosity who survived Auschwitz; not my friend who is a wickedly smart writer, activist, and wheelchair user currently recovering from major surgery; nor me, with my immune system that doesn’t work well, or works too hard, attacking my own tissues. In the United States, most of my disabled and sick friends believe we are racing to a similar situation as Italy.... The Nazis called chronically ill and disabled people 'useless eaters,' and killed us first.... As a disabled, Jewish, second-generation Holocaust survivor, the words 'useless eater' are practically in my DNA. I can taste the tang of them in my mouth as I read the news, in the bitterness of Italy’s policies, in this country’s callous health care, in affluent people refusing to listen to sick and disabled voices and stay home when they can afford to, in the dismissive internet comments that only the sick and old need to worry, so who cares?... Jewish mysticism holds that the letters of a Torah scroll are black fire on the white fire of the parchment. In this moment, we must find a way to make the spaces between us holy. In this pandemic it is the white fire that will hold our abundant love, our exquisite care, and our unwavering belief that each of our lives is worth saving."

From "My Life Is More ‘Disposable’ During This Pandemic/The ableism and ageism being unleashed is its own sort of pestilence" by Elliot Kukla (NYT).

"New C.D.C. data showed that nearly 40 percent of patients sick enough to be hospitalized were aged 20 to 54. But the risk of dying was significantly higher in older people."

A subheadline at the NYT (which should be accessible whether you have a subscription or not).

I'm questioning "sick enough." Perhaps the degree of sickness warranting hospitalization is lower for younger people. Should the care be used on the sickest people or on the ones most likely to benefit from care?

Anyway, it's important for people who are faced with the effort of social distancing to see that youth is not immunity. Though "20 to 54" is a big category. What about those under 40? Under 30?

Here's a closer look from the underlying CDC report (also on this table):
As of March 16, a total of 4,226 COVID-19 cases had been reported in the United States, with reports increasing to 500 or more cases per day beginning March 14 (Figure 1). Among 2,449 patients with known age, 6% were aged ≥85, 25% were aged 65–84 years, 18% each were aged 55–64 years and 45–54 years, and 29% were aged 20–44 years (Figure 2). Only 5% of cases occurred in persons aged 0–19 years.

Among 508 (12%) patients known to have been hospitalized, 9% were aged ≥85 years, 26% were aged 65–84 years, 17% were aged 55–64 years, 18% were 45–54 years, and 20% were aged 20–44 years. Less than 1% of hospitalizations were among persons aged ≤19 years (Figure 2). The percentage of persons hospitalized increased with age, from 2%–3% among persons aged ≤9 years, to ≥31% among adults aged ≥85 years. (Table).

Among 121 patients known to have been admitted to an ICU, 7% of cases were reported among adults ≥85 years, 46% among adults aged 65–84 years, 36% among adults aged 45–64 years, and 12% among adults aged 20–44 years (Figure 2). No ICU admissions were reported among persons aged ≤19 years. Percentages of ICU admissions were lowest among adults aged 20–44 years (2%–4%) and highest among adults aged 75–84 years (11%–31%) (Table).

Among 44 cases with known outcome, 15 (34%) deaths were reported among adults aged ≥85 years, 20 (46%) among adults aged 65–84 years, and nine (20%) among adults aged 20–64 years. Case-fatality percentages increased with increasing age, from no deaths reported among persons aged ≤19 years to highest percentages (10%–27%) among adults aged ≥85 years (Table) (Figure 2).
It's easy to know how old each person is, but the differences may have more to do with each person's health and strength, which correlates roughly to age. If so and if anyone is thinking that those who vulnerable to this disease should accept their fate and not expect so much sacrifice from the rest of us, they ought to realize that it's not just about old and young. It's about weak and strong.

From the NYT article:
The report included no information about whether patients of any age had underlying risk factors, such as a chronic illness or a compromised immune system. So, it is impossible to determine whether the younger patients who were hospitalized were more susceptible to serious infection than most others in their age group....


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